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NEWS

Eliza’s Story

07.02.17

Ross contacted the Ben Fund to ask for help to support his eldest daughter, Eliza. Eliza is 5 years old and suffers from Rett Syndrome, which is a neurological condition caused by a genetic disorder. Eliza is unable to walk, talk, use her hands or undertake basic daily tasks independently. Catherine is a full-time mother to the children, as well as Eliza’s full-time carer.

Eliza with her family

As Eliza gets older it is more difficult to lift and carry her without causing discomfort. Therefore, Ross and Catherine worked with the local authority to obtain funding to convert their garage into a downstairs bedroom and bathroom to support Eliza’s ongoing needs.

In addition to the garage conversion, Eliza needs a specialist rise and fall bath so she can bath at a height comfortable for Ross and Catherine to stand beside her. This will last her through to adulthood and the Ben Fund was able to contribute to the costs of the bath, as the local authority only had the resources to support a wet room with shower.

bath-2-rise

This combined funding has allowed Ross and Catherine to provide bespoke support that fits Eliza’s ongoing needs and the contributions ICE members make to the Ben Fund makes it possible to award financial assistance grants of this kind.

The Ben Fund can offer financial support for adaptations to make housing more suitable when mobility is affected by illness, disability or age. If you think you need support of this kind, please contact the Ben Fund at info@icebenfund.com or find out more about financial assistance and how to apply here.